Showing posts with label ponseti. Show all posts
Showing posts with label ponseti. Show all posts

Tuesday, February 2, 2021

All of this before she's one?!

She had already endured more in her first 6 months than most have in their entire lifetime.

Valencia as a girl's name is of Latin origin meaning "strong or healthy". It derives from Valentinus, a saint's name. It is also a place name for the city on the Mediterranean coast of Spain, known for its oranges.

    I named her correctly. She is strong, stronger than many people I've met. Within her first six months of life, she has already endured more than most have and will endure in their entire lifespan. I am in awe of her spirit whenever we are faced with a challenge. She not only takes it head on but also does it with a smile.    

    So, just to recap we have had six weeks of casts on both legs, six weeks of a Ponseti brace with a bar keeping legs separated, a NCV test and multiple blood tests as well as multiple other tests to check all areas of Valencia's body. Whew! And we are still enduring more. 

    I wanted to take a break from the procedures though to tell about the victories too. V is for Valencia and is V for victory. (Yes, I'm an educator at heart). 

    I remember this day as if it was yesterday cliché to say I know but it's true, because it's one of the happy days. One of the days, we got good news from the doctors and not more procedures or test to do. We got to take the casts and braces off, her little legs would get a break *no pun intended. 



    This was her first car ride home without a brace, a cast, or a wrap. Based off her look I don't even think she believed it! We were excited on this day, it gave a sense of "normalcy" little did we know that our normal would always look a little different from others. It is a life we have learned to love and continue to learn from each day. Things may look different for us but we have embraced it and share the victories as well as the setbacks with all. 



Monday, January 11, 2021

Brace yourself

 Brace Yourself for what comes next

    O.k. whew! We got through casting. Her feet looked dramatically different and that only took six weeks. The amniotic bands that were wrapped around caused bilateral clubfeet and that was just one condition. The casting worked though, I kept saying that to myself because I knew deep down that we weren't done but I wanted what my baby just went through to be over, no more procedures, "We're done right?" I would ask the doctors. I.WAS.SO.WRONG!!! We were just beginning. 


    So, her feet looked so much better but as I stated we were just beginning. She now had to be in what's called a Ponseti brace (named after the inventor). This brace would have to be worn 24/7 for 3 months only to be taken off for baths. When I tell you children are the epitome of resilience they absolutely are. This brace wouldn't be worn by the strongest of men or woman today without a full fit and yet here my 3 month old baby was wearing it daily with a smile. She learned how to crawl with this brace and would just happily mosey around the house, she learned how to sleep on her side while leaning the brace against her crib, she even taught me how to hold her and carry her without a worry while in this brace. Yes, resilience is born in every child and somehow as we grow older we grow out of it, that's one trait that 2020 retaught us for sure.




    One take away that I hope we all get from learning about Valencia's journey is the trait of resilience. We all have it, it's what we do with it that makes a difference.